American - Journalist | 1985 -
Some people say how they'd like to live in different eras. Not me.
Susannah Cahalan
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NMDA receptors are concentrated in the areas that control learning and memory, higher functions like multitasking, and some of the more subtle aspects of personality. When the immune system makes antibodies that attack these receptors, people may have seizures and violent fits.
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The first neurologist I saw just thought I was partying too much, and he stuck by that claim even after my family insisted that he was wrong.
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The true story of how my husband, Stephen, and I exchanged our first 'I love you's' - chronicled in my 2012 memoir 'Brain on Fire' - occurred deep in a hallucinatory psychotic episode outside a crowded Maplewood, NJ, restaurant.
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When my disease nearly destroyed me in 2009, my doctors thought I'd be lucky to regain 80 percent of my cognitive abilities. When I was at my sickest, I couldn't read or write. I could barely walk on my own or groom myself. The disease felled me physically and mentally - robbing me, briefly but intensely, of my wits, my sanity, my memory, my self.
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I shouldn't have been diagnosed as swiftly as I had been. I shouldn't have recovered as fully as I did. I shouldn't have been able to write a book that did as well as it did, and that book should never have been made into a movie. Yet, here I am.
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When 'Brain on Fire' premiered at the Toronto Film Festival in 2016, I fixated on inconsequential things like what dress I would wear and how much weight I wanted to lose. I lost my perspective.
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To see my story turned into a movie is mind-blowing.
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To hear the words 'autoimmune encephalitis' in a movie is amazing to me, and I'm so proud.
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Be your own advocate.
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For me, I think that there's a lot missing from the recovery or the post-diagnosis side of treating patients. Once the diagnosis is made, I feel that care drops off tremendously, even though it is precisely the time that a patient needs help the most, even if they are not verbalizing it.
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Before I was a reporter, I worked at a record store in New Jersey.
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