American - Writer | -
One of the most stubborn barriers to patient empowerment is the cultural assumption that since the way professionals learned was hard, you must need to be really smart, and you need to be taught in a carefully thought out, methodical sequence.
Dave deBronkart
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Too often, hospital staff are incented by management to get work done without worrying about care, and clinicians are too often not even trained to think about care.
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Me being me, I put the numbers from my hospital's website from my tumor sizes into a spreadsheet.
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Where does my body end and an invader start? And cancer, a tumor, is something you grow out of your own tissue. How does that happen? Where does medical ability end and start?
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I've been online long enough to know if I don't like the first results I get, I go look for more.
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Think about the possibility: why is it that iPhones and iPads advance far faster than the health tools that are available to you to help take care of your family?
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Ever tried to get sleep in a hospital? Ever wonder if anyone even taught them what care is? Some hospitals are great, but some sure aren't.
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In my book, 'Let Patients Help,' one chapter is titled 'Let patients vote on what's worth the cost.' That's sensible, right? In other industries, consumer preference is a key determinant in prices.
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Careful writing is important for many reasons, not least that intelligent but hurried reporters will trust the presser, resulting in a cascade of secondary damage.
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Value in medicine depends on information - as I said in 'Let Patients Help,' 'People perform better when they're informed better.' It follows that to make patients and families more effective in care, they need to know more.
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Diagnosed incidentally with stage IV, grade 4 metastatic renal cell carcinoma, I had bone metastases in my femur (which eventually fractured), ulna, and cranium; five metastases in my lungs; and muscle metastases in my thigh and tongue. Yet six months after diagnosis, my treatment ended: I've not had a drop of anything since.
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The baby boomer surge is forcing society to face decisions about costs - and particularly what is valuable. It's senseless for clinicians and governments to bear these choices alone; a sad effect of needless paternalism is that it places a false burden on responsible people.
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